护士对Berardinelli-Seip先天性脂肪营养不良的知识

包含199名护士对Berardinelli-Seip先天性脂肪营养不良知识的问卷调查数据,评估其认知水平及医疗需求。

Figshare
2018-06-04 更新
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表格RegionalRN statepractice patternshealth care assistanceMarianoHUOLSignificant efforts199 nursesOnofreLopeadipose tissueautosomal recessive disease
Nurses' knowledge about Berardinelli-Seip Congenital Lipodystrophy

基本信息

模态
表格
大小
0.000163336 GB
许可
CC BY 4.0
创建/更新时间
2018-06-04
版本
v1

资源简介

护士对Berardinelli-Seip先天性脂肪营养不良的知识

【数据集背景】

本数据集源站标题为《Nurses'' knowledge about Berardinelli-Seip Congenital Lipodystrophy》。配套论文《Nurses'' knowledge about Berardinelli-Seip Congenital Lipodystrophy》发表于 PLOS ONE(2018),DOI:10.1371/journal.pone.0197784。源站首次发布:2018-06-04。

【数据内容】

源站原始描述:Berardinelli-Seip Congenital Lipodystrophy (BSCL) is a rare autosomal recessive disease characterized by the almost complete absence of adipose tissue. Due to a strong founder effect that resulted in a higher prevalence of BSCL in Rio Grande do Norte (RN), a state in northeastern Brazil, it has been essential that health professionals develop knowledge about this disease. Nurses are often the first point of contact with patients during health care assistance. The purpose of this study was to inv…

【数据结构与技术规格】

文件数 3 个,合计 163.34 KB。pone.0197784.s001.docx:application/vnd.openxmlformats-officedocument.wordprocessingml.document,51.17 KB。pone.0197784.s002.docx:application/vnd.openxmlformats-officedocument.wordprocessingml.document,52.21 KB。pone.0197784.s003.xlsx:application/vnd.openxmlformats-officedocument.spreadsheetml.sheet,59.95 KB。数据集 DOI:10.1371/journal.pone.0197784。

【主题与分类】

源站学科分类:Medicine、Environmental Sciences not elsewhere classified、Sociology、Biological Sciences not elsewhere classified、Science Policy。主题标签:Regional、RN state、practice patterns、health care assistance、Mariano、HUOL、Significant efforts、199 nurses、Berardinelli-Seip Congenital Lipodystrophy Berardinelli-Seip Congenital Lipodystrophy、Onofre。

【适用方向】

结构化表格数据可直接用于统计建模、特征工程与队列分析。

【获取与许可】

源站页面:https://plos.figshare.com/articles/dataset/Nurses_knowledge_about_Berardinelli-Seip_Congenital_Lipodystrophy/6429713

使用许可:CC BY 4.0(https://creativecommons.org/licenses/by/4.0/)。

规范引用:Dantas, Verônica Kristina Cândido; da Silva Soares, Joice; de Azevedo Medeiros, Lázaro Batista; Sarmento, Aquiles Sales Craveiro; Nobre, Thaiza Teixeira Xavier; de Andrade, Fábia Barbosa; et al. (2018). Nurses'' knowledge about Berardinelli-Seip Congenital Lipodystrophy. PLOS ONE. Dataset

【使用注意】

· 源站最后修改于 2023-06-01,引用时请注意版本时效。

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下载信息

注册下载

需要注册 Kaggle 账号并登录后下载,适合需要跟踪下载记录和使用 API 的用户。

暂未开放

公开下载

无需注册即可直接获取公开样本或文档,适合快速预览和评估数据集质量。

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有偿下载

公开数据集受托下载与技术交付服务。

提供高速下载与技术交付服务(收技术服务费,非数据销售)

暂未开放

当前数据集主要来源为 Kaggle 公开托管,完整影像包建议通过原始链接或 Kaggle API 获取。

使用方式

数据集获取(Figshare)

命令行下载

curl -L -o "pone.0197784.s001.docx" "https://ndownloader.figshare.com/files/11827892"
curl -L -o "pone.0197784.s002.docx" "https://ndownloader.figshare.com/files/11827898"
curl -L -o "pone.0197784.s003.xlsx" "https://ndownloader.figshare.com/files/11827901"

文件清单

  • pone.0197784.s001.docx(51.17 KB)
  • pone.0197784.s002.docx(52.21 KB)
  • pone.0197784.s003.xlsx(59.95 KB)

文件总体积 163.34 KB(源站 API 实测)。

数据加载示例(图像类)

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Berardinelli-Seip Congenital Lipodystrophy (BSCL) is a rare autosomal recessive disease characterized by the almost complete absence of adipose tissue. Due to a strong founder effect that resulted in a higher prevalence of BSCL in Rio Grande do Norte (RN), a state in northeastern Brazil, it has been essential that health professionals develop knowledge about this disease. Nurses are often the first point of contact with patients during health care assistance. The purpose of this study was to investigate the knowledge of these professionals about BSCL in two main hospitals in RN state. A questionnaire was applied to 199 nurses working in the Hospital Regional Mariano Coelho—HRMC (Regional Hospital Mariano Coelho), in Currais Novos–RN, and in the Hospital Universitário Onofre Lopes—HUOL (University Hospital Onofre Lopes), in Natal–RN. This study showed that most nursing professionals do not know about the disease, although they have already received patients with BSCL in those hospitals. The nurses from HRMC and HUOL lacked knowledge of BSCL and the healthcare of these patients requires immediate improvement. Significant efforts are required to close the gap between current and needed practice patterns.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.1371/journal.pone.0197784(source: https://plos.figshare.com/articles/dataset/Nurses_knowledge_about_Berardinelli-Seip_Congenital_Lipodystrophy/6429713)。

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