复杂慢性病患者：与患者门户访问相关的医疗使用和临床事件
包含165,447名糖尿病患者的医疗使用数据，用于分析患者门户访问对门诊、急诊和可预防住院次数的影响。
基本信息
资源简介
复杂慢性病患者：与患者门户访问相关的医疗使用和临床事件
【一句话概览】
本数据集是 figshare 公开的结构化表格数据集，收录 3 个文件、合计 85.98 KB，主题涵盖 Limitations Observational study、design Observational study、portal access、patient portal、outpatient visits，可用于统计建模、特征工程与队列分析，CC BY 4.0 许可开放获取。
【数据集背景】
本数据集源站标题为《Patients with complex chronic conditions: Health care use and clinical events associated with access to a patient portal》。配套论文《Patients with complex chronic conditions: Health care use and clinical events associated with access to a patient portal》发表于 PLOS ONE（2019），DOI：10.1371/journal.pone.0217636。源站首次发布：2019-06-19。
【数据内容】
源站原始描述：Background For patients with diabetes, many with multiple complex chronic conditions, using a patient portal can support self-management and coordination of health care services, and may impact the frequency of in-person health care visits. Objective To examine the impact of portal access on the number of outpatient visits, emergency visits, and preventable hospitalizations. Design Observational study comparing patients’ visit rates with and without portal access, using marginal structural model…
【数据结构与技术规格】
文件数 3 个，合计 85.98 KB。pone.0217636.s001.tif：image/tiff，53.53 KB。pone.0217636.s002.docx：application/vnd.openxmlformats-officedocument.wordprocessingml.document，18.74 KB。pone.0217636.s003.docx：application/vnd.openxmlformats-officedocument.wordprocessingml.document，13.72 KB。数据集 DOI：10.1371/journal.pone.0217636。
【主题与分类】
源站学科分类：Medicine、Cell Biology、Biotechnology、Developmental Biology、Marine Biology、Cancer。主题标签：Limitations Observational study、design Observational study、portal access、patient portal、outpatient visits、health care services、delivery system、health care visits、outpatient office visits、patient portal Background。
【适用方向】
结构化表格数据可直接用于统计建模、特征工程与队列分析。
【获取与许可】
源站页面：https://plos.figshare.com/articles/dataset/Patients_with_complex_chronic_conditions_Health_care_use_and_clinical_events_associated_with_access_to_a_patient_portal/8296505
使用许可：CC BY 4.0（https://creativecommons.org/licenses/by/4.0/）。
规范引用：Reed, Mary E.; Huang, Jie; Brand, Richard J.; Neugebauer, Romain; Graetz, Ilana; Hsu, John; et al. (2019). Patients with complex chronic conditions: Health care use and clinical events associated with access to a patient portal. PLOS ONE. Dataset
【使用注意】
· 源站最后修改于 2023-06-05，引用时请注意版本时效。
下载信息
注册下载
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公开数据集受托下载与技术交付服务。
提供高速下载与技术交付服务（收技术服务费，非数据销售）
暂未开放当前数据集主要来源为 Kaggle 公开托管，完整影像包建议通过原始链接或 Kaggle API 获取。
使用方式
数据集获取（Figshare）
- 源站标题：Patients with complex chronic conditions: Health care use and clinical events associated with access to a patient portal
- DOI：10.1371/journal.pone.0217636
- 发布日期：2019-06-19
- 文件数：3 个
- 文件总体积：85.98 KB
- 源站页面：https://plos.figshare.com/articles/dataset/Patients_with_complex_chronic_conditions_Health_care_use_and_clinical_events_associated_with_access_to_a_patient_portal/8296505
命令行下载
curl -L -o "pone.0217636.s001.tif" "https://ndownloader.figshare.com/files/15545606"
curl -L -o "pone.0217636.s002.docx" "https://ndownloader.figshare.com/files/15545612"
curl -L -o "pone.0217636.s003.docx" "https://ndownloader.figshare.com/files/15545615"
文件清单
pone.0217636.s001.tif（53.53 KB）pone.0217636.s002.docx（18.74 KB）pone.0217636.s003.docx（13.72 KB）
文件总体积 85.98 KB（源站 API 实测）。
数据说明
Background
For patients with diabetes, many with multiple complex chronic conditions, using a patient portal can support self-management and coordination of health care services, and may impact the frequency of in-person health care visits.
Objective
To examine the impact of portal access on the number of outpatient visits, emergency visits, and preventable hospitalizations.
Design
Observational study comparing patients’ visit rates with and without portal access, using marginal structural modeling with inverse probability weighting estimates to account for potential bias due to confounding and attrition.
Setting
Large integrated delivery system which implemented a patient portal (2006–2007).
Patients
We examined 165,447 patients with diabetes defined using clinical registries. Our study included both patients with diabetes-only and patients with multiple complex chronic conditions (diabetes plus asthma, congestive artery disease, congestive heart failure, or hypertension).
Measurements
We examined rates of outpatient office visits, emergency room visits, and preventable hospitalizations (for ambulatory care sensitive conditions).
Results
Access to a patient portal was associated with significantly higher rates of outpatient office visits, in both patients with diabetes only and in patients with multiple complex conditions (pLimitations
Observational study in an integrated delivery system.
Conclusion
Access to a patient portal can increase engagement in outpatient visits, potentially addressing unmet clinical needs, and reduce downstream health events that lead to emergency and hospital care, particularly among patients with multiple complex conditions.
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.1371/journal.pone.0217636（source: https://plos.figshare.com/articles/dataset/Patients_with_complex_chronic_conditions_Health_care_use_and_clinical_events_associated_with_access_to_a_patient_portal/8296505）。
数据缺失？
依托陕西、四川两大基地，我们与超过十家三甲医院建立直接合作关系，覆盖合规授权、采集治理、专业标注、数据交付的全流程，为AI医疗团队提供即拿即用的高质量临床数据。
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