法国系统性硬化症相关间质性肺病流行病学、死亡率与医疗资源利用数据集

数据集获取（Figshare）

• 源站标题：Data_Sheet_1_Epidemiology, Mortality and Healthcare Resource Utilization Associated With Systemic Sclerosis-Associated Interstitial Lung Disease in France.docx
• DOI：10.3389/fmed.2021.699532.s001
• 发布日期：2021-08-30
• 文件数：1 个
• 文件总体积：88.30 KB
• 源站页面：https://frontiersin.figshare.com/articles/dataset/Data_Sheet_1_Epidemiology_Mortality_and_Healthcare_Resource_Utilization_Associated_With_Systemic_Sclerosis-Associated_Interstitial_Lung_Disease_in_France_docx/16531905

命令行下载

curl -L -o "Data_Sheet_1_Epidemiology, Mortality and Healthcare Resource Utilization Associated With Systemic Sclerosis-Associated Interstitial Lung Disease in Fr.docx" "https://ndownloader.figshare.com/files/30568701"

文件清单

• Data_Sheet_1_Epidemiology, Mortality and Healthcare Resource Utilization Associated With Systemic Sclerosis-Associated Interstitial Lung Disease in Fr.docx（88.30 KB）

文件总体积 88.30 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Objectives: To investigate the clinical characteristics, epidemiology, survival estimates and healthcare resource utilization and associated costs in patients with systemic sclerosis-associated interstitial lung disease (SSc-ILD) in France.
Methods: The French national administrative healthcare database, the Système National des Données de Santé (SNDS), includes data on 98.8% of the French population, including data relating to ambulatory care, hospitalizations and death. In our study, claims data from the SNDS were used to identify adult patients with SSc-ILD between 2010 and 2017. We collected data on clinical features, incidence, prevalence, survival estimates, healthcare resource use and costs.
Results: In total, 3,333 patients with SSc-ILD were identified, 76% of whom were female. Patients had a mean age [standard deviation (SD)] of 60.6 (14.4) years and a mean (SD) individual study duration of 3.9 (2.7) years. In 2016, the estimated overall incidence and prevalence were 0.69/100,000 individuals and 5.70/100,000 individuals, respectively. The overall survival estimates of patients using Kaplan–Meier estimation were 93, 82, and 55% at 1, 3, and 8 years, respectively. During the study, 98.7% of patients had ≥1 hospitalization and 22.3% of patients were hospitalized in an intensive care unit. The total annual mean healthcare cost per patient with SSc-ILD was €25,753, of which €21,539 was related to hospitalizations.
Conclusions: This large, real-world longitudinal study provides important insights into the epidemiology of SSc-ILD in France and shows that the disease is associated with high mortality, healthcare resource utilization and costs. SSc-ILD represents a high burden on both patients and healthcare services.
Clinical Trial Registration:www.ClinicalTrials.gov, identifier: NCT03858842.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.3389/fmed.2021.699532.s001（source: https://frontiersin.figshare.com/articles/dataset/Data_Sheet_1_Epidemiology_Mortality_and_Healthcare_Resource_Utilization_Associated_With_Systemic_Sclerosis-Associated_Interstitial_Lung_Disease_in_France_docx/16531905）。