受访者特征
间质性肺病患者家庭数字设备使用调查数据，包含人口特征、设备使用、感知效用和障碍。
基本信息
资源简介
受访者特征
【一句话概览】
本数据集是 figshare 公开的结构化表格数据集，收录 1 个文件、合计 5.63 KB，主题涵盖 worsening breathlessness 53、patient partners interested、month validation process、frequently used device、interstitial lung diseases，可用于统计建模、特征工程与队列分析，CC BY 4.0 许可开放获取。
【数据集背景】
本数据集源站标题为《Respondents’ characteristics.》。源站首次发布：2024-01-08。
【数据内容】
源站原始描述：Introduction Patients diagnosed with Interstitial Lung Diseases (ILD) use devices to self-monitor their health and well-being. Little is known about the range of devices, selection, frequency and terms of use and overall utility. We sought to quantify patients’ usage and experiences with home digital devices, and further evaluate their perceived utility and barriers to adaptation. Methods A team of expert clinicians and patient partners interested in self-management approaches designed a 48-ques…
【数据结构与技术规格】
文件数 1 个，合计 5.63 KB。Table 1.xls：application/vnd.ms-excel，5.63 KB。数据集 DOI：10.1371/journal.pdig.0000318.t001。
【主题与分类】
源站学科分类：Medicine、Biotechnology、Cancer、Science Policy、Infectious Diseases。主题标签：worsening breathlessness 53、patient partners interested、month validation process、frequently used device、interstitial lung diseases、86 %) reported、31 %) measured、22 %) used、respondents reported home、pulse oximetry devices。
【适用方向】
结构化表格数据可直接用于统计建模、特征工程与队列分析。
【获取与许可】
源站页面：https://plos.figshare.com/articles/dataset/Respondents_characteristics_/24963370
使用许可：CC BY 4.0（https://creativecommons.org/licenses/by/4.0/）。
规范引用：Althobiani, Malik A.; Shuttleworth, Rebecca; Conway, John; Dainton, Jonathan; Duckworth, Anna; Da Ponte, Ana Jorge; et al. (2024). Respondents’ characteristics.. PLOS Digital Health. Dataset
下载信息
注册下载
需要注册 Kaggle 账号并登录后下载，适合需要跟踪下载记录和使用 API 的用户。
暂未开放公开下载
无需注册即可直接获取公开样本或文档，适合快速预览和评估数据集质量。
免登录有偿下载
公开数据集受托下载与技术交付服务。
提供高速下载与技术交付服务（收技术服务费，非数据销售）
暂未开放当前数据集主要来源为 Kaggle 公开托管，完整影像包建议通过原始链接或 Kaggle API 获取。
使用方式
数据集获取（Figshare）
- 源站标题：Respondents’ characteristics.
- DOI：10.1371/journal.pdig.0000318.t001
- 发布日期：2024-01-08
- 文件数：1 个
- 文件总体积：5.63 KB
- 源站页面：https://plos.figshare.com/articles/dataset/Respondents_characteristics_/24963370
命令行下载
curl -L -o "Table 1.xls" "https://ndownloader.figshare.com/files/43959025"
文件清单
Table 1.xls（5.63 KB）
文件总体积 5.63 KB（源站 API 实测）。
数据加载示例（图像类）
from PIL import Image
import glob, os
files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
+ glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
+ glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)
# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path) # 要求 子目录=类别
目录组织与标注格式以源站说明和下载后实际文件为准。
数据说明
Introduction
Patients diagnosed with Interstitial Lung Diseases (ILD) use devices to self-monitor their health and well-being. Little is known about the range of devices, selection, frequency and terms of use and overall utility. We sought to quantify patients’ usage and experiences with home digital devices, and further evaluate their perceived utility and barriers to adaptation.
Methods
A team of expert clinicians and patient partners interested in self-management approaches designed a 48-question cross-sectional electronic survey; specifically targeted at individuals diagnosed with ILD. The survey was critically appraised by the interdisciplinary self-management group at Royal Devon University Hospitals NHS Foundation Trust during a 6-month validation process. The survey was open for participation between September 2021 and December 2022, and responses were collected anonymously. Data were analysed descriptively for quantitative aspects and through thematic analysis for qualitative input.
Results
104 patients accessed the survey and 89/104 (86%) reported a diagnosis of lung fibrosis, including 46/89 (52%) idiopathic pulmonary fibrosis (IPF) with 57/89 (64%) of participants diagnosed >3 years and 59/89 (66%) female. 52/65(80%) were in the UK; 33/65 (51%) reported severe breathlessness medical research council MRC grade 3–4 and 32/65 (49%) disclosed co-morbid arthritis or joint problems. Of these, 18/83 (22%) used a hand- held spirometer, with only 6/17 (35%) advised on how to interpret the readings. Pulse oximetry devices were the most frequently used device by 35/71 (49%) and 20/64 (31%) measured their saturations more than once daily. 29/63 (46%) of respondents reported home-monitoring brought reassurance; of these, for 25/63 (40%) a feeling of control. 10/57 (18%) felt it had a negative effect, citing fluctuating readings as causing stress and ‘paranoia’. The most likely help-seeking triggers were worsening breathlessness 53/65 (82%) and low oxygen saturation 43/65 (66%). Nurse specialists were the most frequent source of help 24/63 (38%). Conclusion: Patients can learn appropriate technical skills, yet perceptions of home-monitoring are variable; targeted
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.1371/journal.pdig.0000318.t001（source: https://plos.figshare.com/articles/dataset/Respondents_characteristics_/24963370）。
数据缺失？
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