提升脊髓损伤患者生活质量的需求识别：瑞典需求评估项目的一部分

数据集获取（Figshare）

• 源站标题：Identified needs to enhance life for people with spinal cord injury: a part of the Swedish Needs Assessment Project
• DOI：10.6084/m9.figshare.27151258.v1
• 发布日期：2024-10-02
• 文件数：1 个
• 文件总体积：166.86 KB
• 源站页面：https://tandf.figshare.com/articles/dataset/Identified_needs_to_enhance_life_for_people_with_spinal_cord_injury_a_part_of_the_Swedish_Needs_Assessment_Project/27151258

命令行下载

curl -L -o "idre_a_2406982_sm0095.xlsx" "https://ndownloader.figshare.com/files/49559527"

文件清单

• idre_a_2406982_sm0095.xlsx（166.86 KB）

文件总体积 166.86 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

To identify factors that contribute to the enhanced life of people with spinal cord injury (SCI) in Sweden.
This cross-sectional study combined workshops (n = 38) and survey data (n = 243) from people living with SCI and their relatives, health professionals, and personal care assistants working with people living with SCI. The data were first categorized using Bronfenbrenner’s bioecological model, followed by a conventional content analysis.
The factors that contribute to an enhanced life for people living with SCI are similar to those of the general population, including relationships, leisure activities, and occupation within the mesosystem. However, the unique components of the exosystem and macrosystem are specifically associated with people living with SCI. The exosystem, particularly in healthcare, plays a major role for medical reasons but also tends to obtrude and minimize the mesosystem. The macrosystem is essential, as it sets the rules that govern the actors in the other layers, creating prerequisites for meeting the needs of the mesosystem and exosystem.
The needs that contribute to an enhanced life are multifaceted and individualized. Therefore, these systems must be flexible throughout the lifespan of individuals with SCI.

This paper reports needs that contribute to an enhanced life for people living with spinal cord injury in Sweden.
The factors that contribute to an enhanced life are multifaceted and individual, and these must be considered throughout the entire life span, including getting help if secondary complications arise, aging and other life events.
Individuals’ willingness to take ownership is strong but requires support from the surrounding systems that can accommodate individual’s unique needs.
The exosystem (ea health care) plays a major role but risk to obtrude and minimize the mesosystem (individual’s immediate relations).
Positive attitudes toward oneself, from family members and loved ones, from health care professionals and authorities are crucial for an enhanced life.

This paper reports needs that contribute to an enhanced life for people living with spinal cord injury in Sweden.
The factors that contribute to an enhanc

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.27151258.v1（source: https://tandf.figshare.com/articles/dataset/Identified_needs_to_enhance_life_for_people_with_spinal_cord_injury_a_part_of_the_Swedish_Needs_Assessment_Project/27151258）。