运动神经元病诊断过程的生活体验: 一项社会学现象学研究
42名运动神经元病患者诊断体验的定性访谈数据，涵盖诊断过程中的生活体验主题。
基本信息
资源简介
运动神经元病诊断过程的生活体验: 一项社会学现象学研究
【数据集背景】
本数据集源站标题为《Pavey, A, Allen-Collinson, J and Pavey, T (2013) The lived experience of diagnosis delivery in Motor Neurone Disease: a sociological-phenomenological study, Sociological Research Online, 18 (2).》。源站首次发布：2013-12-24。
【数据内容】
源站原始描述：Abstract Relatively few previous studies of individuals receiving a diagnosis of Motor Neurone Disease within the UK health care system have employed qualitative approaches to examine the diagnostic journey from a patient perspective. A qualitative sociological study was undertaken, involving interviews with 42 participants diagnosed with MND, to provide insight into their experiences of undergoing testing and receiving a diagnosis. Adopting a sociological-phenomenological perspective, this arti…
【数据结构与技术规格】
文件数 1 个，合计 476.38 KB。Diagnosis Delivery_Pavey_Allen-Collinson_Pavey.2013.pre pub.pdf：application/pdf，476.38 KB。数据集 DOI：10.6084/m9.figshare.769283.v1。
【主题与分类】
源站学科分类：Sociology not elsewhere classified。主题标签：Sociology、Motor neuron diseases、Sociology of illness、illness、diagnosis、phenomenology、Sociological phenomenology、Sociology。
【适用方向】
文本类数据可用于医学自然语言处理，如命名实体识别、信息抽取与文本分类。
【获取与许可】
源站页面：https://figshare.com/articles/dataset/Pavey_A_Allen_Collinson_J_and_Pavey_T_2013_The_lived_experience_of_diagnosis_delivery_in_Motor_Neurone_Disease_a_sociological_phenomenological_study_Sociological_Research_Online_18_2_/769283
使用许可：CC BY 4.0（https://creativecommons.org/licenses/by/4.0/）。
规范引用：Allen-Collinson, Jacquelyn; Pavey, Amanda; Pavey, Toby (2013). Pavey, A, Allen-Collinson, J and Pavey, T (2013) The lived experience of diagnosis delivery in Motor Neurone Disease: a sociological-phenomenological study, Sociological Research Online, 18 (2).. figshare. Dataset
【使用注意】
· 源站最后修改于 2023-06-02，引用时请注意版本时效。
下载信息
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使用方式
数据集获取（Figshare）
- 源站标题：Pavey, A, Allen-Collinson, J and Pavey, T (2013) The lived experience of diagnosis delivery in Motor Neurone Disease: a sociological-phenomenological study, Sociological Research Online, 18 (2).
- DOI：10.6084/m9.figshare.769283.v1
- 发布日期：2013-12-24
- 文件数：1 个
- 文件总体积：476.38 KB
- 源站页面：https://figshare.com/articles/dataset/Pavey_A_Allen_Collinson_J_and_Pavey_T_2013_The_lived_experience_of_diagnosis_delivery_in_Motor_Neurone_Disease_a_sociological_phenomenological_study_Sociological_Research_Online_18_2_/769283
命令行下载
curl -L -o "Diagnosis Delivery_Pavey_Allen-Collinson_Pavey.2013.pre pub.pdf" "https://ndownloader.figshare.com/files/3097118"
文件清单
Diagnosis Delivery_Pavey_Allen-Collinson_Pavey.2013.pre pub.pdf（476.38 KB）
文件总体积 476.38 KB（源站 API 实测）。
数据说明
Abstract
Relatively few previous studies of individuals receiving a diagnosis of Motor Neurone Disease within the UK health care system have employed qualitative approaches to examine the diagnostic journey from a patient perspective. A qualitative sociological study was undertaken, involving interviews with 42 participants diagnosed with MND, to provide insight into their experiences of undergoing testing and receiving a diagnosis.
Adopting a sociological-phenomenological perspective, this article examines key themes that emerged from participant accounts surrounding the lived experience of the diagnostic journey. The key themes that emerged were: The diagnostic quest; living with uncertainty; hearing bad news; communication difficulties; and a reified body of medical interest.
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.6084/m9.figshare.769283.v1（source: https://figshare.com/articles/dataset/Pavey_A_Allen_Collinson_J_and_Pavey_T_2013_The_lived_experience_of_diagnosis_delivery_in_Motor_Neurone_Disease_a_sociological_phenomenological_study_Sociological_Research_Online_18_2_/769283）。
数据缺失？
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