Table 2_Parent-identified intrinsic and extrinsic factors that influence performance across developmental domains and participation in their communities.docx

阿巴拉契亚农村地区神经发育障碍儿童父母的调查与访谈数据,探索影响发育和社区参与的内在和外在因素。

NIAID Data Ecosystem
浏览 11
表格autism spectrum disorder (ASD)developmental disabilitiesrural healthAppalachia
Table 2_Parent-identified intrinsic and extrinsic factors that influence performance across developmental domains and participation in their communities.docx

基本信息

模态
表格
大小
0.000164098 GB
许可
CC BY 4.0
创建/更新时间
2026-11-04
版本
v1

资源简介

Table 2_Parent-identified intrinsic and extrinsic factors that influence performance across developmental domains and participation in their communities.docx

【一句话概览】

本数据集是 figshare 公开的结构化表格数据集,收录 1 个文件、合计 164.10 KB,主题涵盖 autism spectrum disorder (ASD)、developmental disabilities、rural health、Appalachia,可用于统计建模、特征工程与队列分析,CC BY 4.0 许可开放获取。

【数据集背景】

源站首次发布:2025-02-24。

【数据内容】

源站原始描述:Children with neurodevelopmental disabilities living in rural and low-resourced regions within the United States, such as Appalachia, face gaps and barriers to accessing healthcare services due to a shortage of providers, specialists, hospitals, and clinics. Without access to specialized medical and rehabilitation services, their performance across developmental domains and participation within their communities is likely suboptimal. The purpose of this study was to identify both intrinsic and e…

【数据结构与技术规格】

文件数 1 个,合计 164.10 KB。Table 2_Parent-identified intrinsic and extrinsic factors that influence performance across developmental domains and participation in their communiti.docx:application/vnd.openxmlformats-officedocument.wordprocessingml.document,164.10 KB。数据集 DOI:10.3389/fped.2025.1472743.s002。

【主题与分类】

源站学科分类:Foetal Development and Medicine。主题标签:autism spectrum disorder (ASD)、developmental disabilities、rural health、Appalachia。

【适用方向】

结构化表格数据可直接用于统计建模、特征工程与队列分析。

【获取与许可】

源站页面:https://frontiersin.figshare.com/articles/dataset/Table_2_Parent-identified_intrinsic_and_extrinsic_factors_that_influence_performance_across_developmental_domains_and_participation_in_their_communities_docx/28467863

使用许可:CC BY 4.0(https://creativecommons.org/licenses/by/4.0/)。

规范引用:Bican, Rachel; Shaffer, Sydney; Kinkade, Jayna; McAdams, Quinn; Hughes, Allyson S. (2025). Table 2_Parent-identified intrinsic and extrinsic factors that influence performance across developmental domains and participation in their communities.docx. Frontiers. Dataset

官方服务

专家保障全链路合规授权与标注交付

陕川双基地 × 超十家三甲医院直连

从合规授权、采集治理、专业标注到数据集交付,我们提供全链路闭环服务,让高质量临床数据即拿即用。

⚡️ 需要原始数据或标注支持?联系我们获取定制方案。

帮我联系

下载信息

注册下载

需要注册 Kaggle 账号并登录后下载,适合需要跟踪下载记录和使用 API 的用户。

暂未开放

公开下载

无需注册即可直接获取公开样本或文档,适合快速预览和评估数据集质量。

免登录

当前数据集主要来源为 Kaggle 公开托管,完整影像包建议通过原始链接或 Kaggle API 获取。

免费样本无法满足模型训练要求?千方提供经三甲医院脱敏、带病理回证与专家标注的商业级专病数据集。

使用方式

数据集获取(Figshare)

命令行下载

curl -L -o "Table 2_Parent-identified intrinsic and extrinsic factors that influence performance across developmental domains and participation in their communiti.docx" "https://ndownloader.figshare.com/files/52558997"

文件清单

  • Table 2_Parent-identified intrinsic and extrinsic factors that influence performance across developmental domains and participation in their communiti.docx(164.10 KB)

文件总体积 164.10 KB(源站 API 实测)。

数据加载示例(图像类)

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Children with neurodevelopmental disabilities living in rural and low-resourced regions within the United States, such as Appalachia, face gaps and barriers to accessing healthcare services due to a shortage of providers, specialists, hospitals, and clinics. Without access to specialized medical and rehabilitation services, their performance across developmental domains and participation within their communities is likely suboptimal. The purpose of this study was to identify both intrinsic and extrinsic factors using a mixed-methods approach to better understand factors that may impact performance across developmental domains and participation for children with disabilities living in Appalachia. Parents completed one study visit in which they completed a total of 4 surveys and a semi-structured interview. The surveys included a parent survey (demographic information, medical history for the child, and barriers to receiving healthcare for their child), health literacy screen, the F-Words Life Wheel, and the Pediatric Evaluation of Disability Inventory (PEDI-CAT). The semi-structured interview asked questions in five primary categories: (1) background, (2) understanding of their child’'s medical diagnosis and management of their disability, (3) insurance coverage, (4) barriers to receiving healthcare, and (5) social support. This cross-sectional study included n = 17 parents of n = 26 children with neurodevelopmental disabilities. Themes from the interviews were coded both inductively and deductively. Most of the children had delays in important developmental domains, indicating a need for rehabilitation services. Participants reported significant difficulty finding specialists due to the distance from their house to the specialist, they experienced long waitlists and delayed diagnoses, they had difficulties finding caregivers for their children, they frequently had multiple children with disabilities, and they experience sleep disruptions due to their child(ren) with neurodevelopmental disabilities. The authors provide clinical research recommendations and policy changes that may be considered to help mitigate barriers to healthcare for children with neurodevelopm

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.3389/fped.2025.1472743.s002(source: https://frontiersin.figshare.com/articles/dataset/Table_2_Parent-identified_intrinsic_and_extrinsic_factors_that_influence_performance_across_developmental_domains_and_participation_in_their_communities_docx/28467863)。

需要用于商业化训练或医疗器械注册(NMPA/FDA)?

公开数据往往缺乏完整的病理回证与专家标注。千方医数集依托陕川双基地与超十家三甲医院直连,提供完全合规、去标识化、支持注册级质控的专病数据集交易服务。