神经痛性肌萎缩(Parsonage-Turner综合征)在初级保健环境中的发病率——一项前瞻性队列研究

基于2012年两个初级保健中心前瞻性队列,登记颈肩臂新发主诉并神经科确诊,估算经典神经痛性肌萎缩年发病率为1/1000。

NIAID Data Ecosystem
浏览 14
表格disorderneurologic evaluationneuralgic amyotrophyincidence rateParsonage Turner Syndromearm complaints
Incidence of Neuralgic Amyotrophy (Parsonage Turner Syndrome) in a Primary Care Setting - A Prospective Cohort Study

基本信息

模态
表格
大小
0.000467793 GB
许可
CC BY 4.0
创建/更新时间
2026-11-04
版本
v1

资源简介

神经痛性肌萎缩(Parsonage-Turner综合征)在初级保健环境中的发病率——一项前瞻性队列研究

【一句话概览】

本数据集是 figshare 公开的结构化表格数据集,收录 2 个文件、合计 467.79 KB,主题涵盖 disorder、neurologic evaluation、neuralgic amyotrophy、incidence rate、Parsonage Turner Syndrome,可用于统计建模、特征工程与队列分析,CC BY 4.0 许可开放获取。

【数据集背景】

本数据集源站标题为《Incidence of Neuralgic Amyotrophy (Parsonage Turner Syndrome) in a Primary Care Setting - A Prospective Cohort Study》。配套论文《Incidence of Neuralgic Amyotrophy (Parsonage Turner Syndrome) in a Primary Care Setting - A Prospective Cohort Study》发表于 PLOS ONE(2015),DOI:10.1371/journal.pone.0128361。源站首次发布:2015-05-27。

【数据内容】

源站原始描述:Objective Neuralgic amyotrophy is considered a rare peripheral nervous system disorder but in practice seems grossly under recognized, which negatively affects care for these patients. In this study we prospectively counted the one-year incidence rate of classic neuralgic amyotrophy in a primary care setting. Methods In a prospective cohort study during the year 2012 we registered all new cases of neck, shoulder or arm complaints from two large primary care centers serving a population of 14,118…

【数据结构与技术规格】

文件数 2 个,合计 467.79 KB。S1 Case Descriptions.PDF:application/pdf,195.95 KB。S1 Datafile.SAV:application/octet-stream,271.85 KB。数据集 DOI:10.1371/journal.pone.0128361。

【主题与分类】

源站学科分类:Cell Biology、Neuroscience、Biotechnology、Evolutionary Biology、Cancer、Science Policy。主题标签:disorder、neurologic evaluation、neuralgic amyotrophy、incidence rate、Parsonage Turner Syndrome、arm complaints。

【适用方向】

结构化表格数据可直接用于统计建模、特征工程与队列分析。

【获取与许可】

源站页面:https://plos.figshare.com/articles/dataset/_Incidence_of_Neuralgic_Amyotrophy_Parsonage_Turner_Syndrome_in_a_Primary_Care_Setting_A_Prospective_Cohort_Study_/1427564

使用许可:CC BY 4.0(https://creativecommons.org/licenses/by/4.0/)。

规范引用:van Alfen, Nens; J. J. van Eijk, Jeroen; Ennik, Tessa; O. Flynn, Sean; E. G. Nobacht, Inge; T. Groothuis, Jan; et al. (2016). Incidence of Neuralgic Amyotrophy (Parsonage Turner Syndrome) in a Primary Care Setting - A Prospective Cohort Study. PLOS ONE. Dataset

【使用注意】

· 源站最后修改于 2023-06-05,引用时请注意版本时效。

官方服务

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从合规授权、采集治理、专业标注到数据集交付,我们提供全链路闭环服务,让高质量临床数据即拿即用。

⚡️ 需要原始数据或标注支持?联系我们获取定制方案。

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下载信息

注册下载

需要注册 Kaggle 账号并登录后下载,适合需要跟踪下载记录和使用 API 的用户。

暂未开放

公开下载

无需注册即可直接获取公开样本或文档,适合快速预览和评估数据集质量。

免登录

当前数据集主要来源为 Kaggle 公开托管,完整影像包建议通过原始链接或 Kaggle API 获取。

免费样本无法满足模型训练要求?千方提供经三甲医院脱敏、带病理回证与专家标注的商业级专病数据集。

使用方式

数据集获取(Figshare)

命令行下载

curl -L -o "S1 Case Descriptions.PDF" "https://ndownloader.figshare.com/files/6754542"
curl -L -o "S1 Datafile.SAV" "https://ndownloader.figshare.com/files/6754545"

文件清单

  • S1 Case Descriptions.PDF(195.95 KB)
  • S1 Datafile.SAV(271.85 KB)

文件总体积 467.79 KB(源站 API 实测)。

数据加载示例(图像类)

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Objective
Neuralgic amyotrophy is considered a rare peripheral nervous system disorder but in practice seems grossly under recognized, which negatively affects care for these patients. In this study we prospectively counted the one-year incidence rate of classic neuralgic amyotrophy in a primary care setting.
Methods
In a prospective cohort study during the year 2012 we registered all new cases of neck, shoulder or arm complaints from two large primary care centers serving a population of 14,118. Prior to study, general practitioners received a short training on how to diagnose classic neuralgic amyotrophy. Neuralgic amyotrophy was defined according to published criteria irrespective of family history. Only patients with a classic phenotype were counted as definite cases. After inclusion, patients with suspected neuralgic amyotrophy who had not yet seen a neurologist were offered neurologic evaluation for diagnostic confirmation.
Results
Of the 492 patients identified with new onset neck, shoulder or arm complaints, 34 were suspected of having neuralgic amyotrophy. After neurologic evaluation the diagnosis was confirmed in 14 patients. This amounts to a one-year incidence rate for classic neuralgic amyotrophy of 1 per 1000.
Conclusions
Our findings suggest that neuralgic amyotrophy is 30-50 times more common than previously thought. Unawareness of the disorder and its clinical presentation seems the most likely explanation for this difference. An incidence rate of 1 per 1000 and the long-term sequelae many patients suffer warrant more vigilance in diagnosing the disorder, to pave the way for timely treatment and prevent complications.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.1371/journal.pone.0128361(source: https://plos.figshare.com/articles/dataset/_Incidence_of_Neuralgic_Amyotrophy_Parsonage_Turner_Syndrome_in_a_Primary_Care_Setting_A_Prospective_Cohort_Study_/1427564)。

需要用于商业化训练或医疗器械注册(NMPA/FDA)?

公开数据往往缺乏完整的病理回证与专家标注。千方医数集依托陕川双基地与超十家三甲医院直连,提供完全合规、去标识化、支持注册级质控的专病数据集交易服务。