COVID-19大流行对英国肌萎缩侧索硬化症护理的影响

数据集获取（Figshare）

• 源站标题：Impact of the covid-19 pandemic on amyotrophic lateral sclerosis care in the UK
• DOI：10.6084/m9.figshare.19212995.v1
• 发布日期：2022-02-22
• 文件数：5 个
• 文件总体积：114.19 KB
• 源站页面：https://tandf.figshare.com/articles/dataset/Impact_of_the_covid-19_pandemic_on_amyotrophic_lateral_sclerosis_care_in_the_UK/19212995

命令行下载

curl -L -o "iafd_a_2040533_sm9655.docx" "https://ndownloader.figshare.com/files/34132106"
curl -L -o "iafd_a_2040533_sm9654.docx" "https://ndownloader.figshare.com/files/34132109"
curl -L -o "iafd_a_2040533_sm9653.docx" "https://ndownloader.figshare.com/files/34132112"
curl -L -o "iafd_a_2040533_sm9619.docx" "https://ndownloader.figshare.com/files/34132115"
curl -L -o "iafd_a_2040533_sm9545.docx" "https://ndownloader.figshare.com/files/34132118"

文件清单

• iafd_a_2040533_sm9655.docx（15.88 KB）
• iafd_a_2040533_sm9654.docx（22.68 KB）
• iafd_a_2040533_sm9653.docx（27.19 KB）
• iafd_a_2040533_sm9619.docx（30.30 KB）
• iafd_a_2040533_sm9545.docx（18.14 KB）

文件总体积 114.19 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

The Covid-19 pandemic has impacted healthcare. Our aim was to identify how amyotrophic lateral sclerosis (ALS) care in the UK has been affected by the pandemic by exploring the experiences of people living with ALS (plwALS), healthcare professionals (HCPs) working with plwALS, and ALS care centers. Three surveys were carried out to explore the experiences of plwALS, HCPs and ALS care centers during the pandemic. Quantitative data were analyzed using descriptive and inferential statistics and triangulated with the qualitative data which were analyzed thematically. Responses from 53 plwALS, 73 HCPs and 23 ALS care centers were analyzed. Five main themes were identified: keeping safe, losses, negative emotions, delivering care and alternative care delivery in a pandemic. PlwALS and HCPs felt that care was sub-optimal as a result of the pandemic. Changes to care included longer waiting times and face-to-face appointments being canceled or replaced by virtual consultations. While benefits of virtual consultations were reported, concerns were raised about incomplete clinical assessments and the disruption of provision of testing and interventions. ALS care has changed as a result of the pandemic. Patients have had a lack of face-to-face contact with HCPs and have experienced delays to investigations and treatments. PlwALS and HCPs were concerned about the impact of this change, but the long-term implications remain unclear. We propose recommendations for HCPs caring for plwALS, that will promote continuity of evidenced based care in the context of a pandemic.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.19212995.v1（source: https://tandf.figshare.com/articles/dataset/Impact_of_the_covid-19_pandemic_on_amyotrophic_lateral_sclerosis_care_in_the_UK/19212995）。