运动神经元病患者使用无创通气的远程医疗体验

数据集获取（Figshare）

• 源站标题：Experience of telehealth in people with motor neurone disease using noninvasive ventilation
• DOI：10.6084/m9.figshare.9810803.v1
• 发布日期：2019-09-12
• 文件数：2 个
• 文件总体积：36.25 KB
• 源站页面：https://tandf.figshare.com/articles/dataset/Experience_of_telehealth_in_people_with_motor_neurone_disease_using_noninvasive_ventilation/9810803

命令行下载

curl -L -o "iidt_a_1659864_sm5600.docx" "https://ndownloader.figshare.com/files/17602763"
curl -L -o "iidt_a_1659864_sm5599.docx" "https://ndownloader.figshare.com/files/17602766"

文件清单

• iidt_a_1659864_sm5600.docx（20.53 KB）
• iidt_a_1659864_sm5599.docx（15.72 KB）

文件总体积 36.25 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Evidence is emerging that telehealth provides timely and cost-effective support for individuals with motor neurone disease (MND). However, little is known about the subjective experience of using telehealth. This study was designed to examine the experiences of using telemonitoring in patients with MND on noninvasive ventilation (NIV).
Semi-structured interviews were conducted with seven patients (five males; mean age = 63 yrs; median illness duration = 14 m), who used a telemonitoring device for 24 weeks. Caregivers were present at five of the interviews; they supported communications and provided their feedback. Interviews were audio recorded and transcribed verbatim. Thematic analysis was conducted to find overarching themes.
Five themes were identified: Benefits of Timely Intervention, Reducing the Unnecessary, Increased Self-Awareness, Taking Initiative, and Technical Challenges. Overall, timely interventions were observed as a result of regular monitoring, contributing to both physical and psychological well-being of the participants. The patient-caregiver dyads suggested that telemonitoring could reduce costs, save time and ameliorate hassles associated with attending hospital appointments. Participants articulated that telemonitoring enabled symptom awareness and interpretation; the device also enabled the participants to raise concerns and/or requests to the healthcare professionals via the messaging system. Participants confirmed that the telemonitoring device was easy to use, despite some technical issues.
Telemonitoring was positively experienced. The findings suggest this approach is empowering and effective in promoting patients’ well-being, while potentially reducing unnecessary clinical contact.Implications for Rehabilitation
Care for people with MND demands a flexible approach to accommodate the diversity of clinical needs and relentless physical deterioration.
Telehealth allows clinicians to provide person-centred care for everyone with MND through frequent monitoring.
Holistic and rehabilitative service facilitated by telehealth is generally acceptable and preferred to routine appointments among MND NIV patients.
Telehealth promotes time ef

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.9810803.v1（source: https://tandf.figshare.com/articles/dataset/Experience_of_telehealth_in_people_with_motor_neurone_disease_using_noninvasive_ventilation/9810803）。