多发性硬化症疾病特征与疾病成本综述数据集

数据集获取（Figshare）

• 源站标题：Cost of illness in multiple sclerosis by disease characteristics – A review of reviews
• DOI：10.6084/m9.figshare.25912327.v1
• 发布日期：2024-05-28
• 文件数：2 个
• 文件总体积：1.51 MB
• 源站页面：https://tandf.figshare.com/articles/dataset/Cost_of_illness_in_multiple_sclerosis_by_disease_characteristics_A_review_of_reviews/25912327

命令行下载

curl -L -o "SUPPLEMENTAL FIGURE S1.pdf" "https://ndownloader.figshare.com/files/46605898"
curl -L -o "SUPPLEMENTAL_TABLE_S1_20210810.pdf" "https://ndownloader.figshare.com/files/46605901"

文件清单

• SUPPLEMENTAL FIGURE S1.pdf（421.24 KB）
• SUPPLEMENTAL_TABLE_S1_20210810.pdf（1.09 MB）

文件总体积 1.51 MB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

In light of the increasing number of economic burden studies and heterogeneity in methodology and reporting standards, there is a need for robust evidence synthesis on an umbrella review level.
We performed the first review of reviews of cost-of-illness studies in multiple sclerosis. Focusing on disaggregated costs by disease characteristics (disability level, relapse, disease course), we also characterized the underlying methodological evidence base of individual (primary) studies.
We identified 17 reviews encompassing 111 unique primary studies, and a high degree of overlap across reviews. Costs were substantial, rising with disability level, relapse episodes, and disease progression. Disability was the key cost driver. Compared to mild disability, total costs for moderate disability were 1.4–2.3-fold higher and 1.8–2.9-fold higher for severe disability. With escalating disability, the share of costs outside the health system (indirect costs, informal care) increasingly outweighed the share of direct medical costs. Of all 111 primary studies, 72% gathered resource use/loss data by patient self-report. Associated costs were mostly reported by disability level (75%), followed by relapse (48%) and disease course (21%). In conclusion, although heterogeneity can make in-depth comparisons of costs across studies impossible, important patterns are broadly apparent.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.25912327.v1（source: https://tandf.figshare.com/articles/dataset/Cost_of_illness_in_multiple_sclerosis_by_disease_characteristics_A_review_of_reviews/25912327）。