揭示治疗负担作为中风护理的关键概念：定性研究的系统回顾

数据集获取（Figshare）

• 源站标题：Uncovering Treatment Burden as a Key Concept for Stroke Care: A Systematic Review of Qualitative Research
• DOI：10.1371/journal.pmed.1001473
• 发布日期：2013-06-25
• 文件数：8 个
• 文件总体积：451.15 KB
• 源站页面：https://plos.figshare.com/articles/dataset/_Uncovering_Treatment_Burden_as_a_Key_Concept_for_Stroke_Care_A_Systematic_Review_of_Qualitative_Research_/731401

命令行下载

curl -L -o "Figure_S1.doc" "https://ndownloader.figshare.com/files/1100954"
curl -L -o "Table_S1.doc" "https://ndownloader.figshare.com/files/1100955"
curl -L -o "Table_S2.docx" "https://ndownloader.figshare.com/files/1100956"
curl -L -o "Table_S3.xlsx" "https://ndownloader.figshare.com/files/1100957"
curl -L -o "Table_S4.xlsx" "https://ndownloader.figshare.com/files/1100958"
curl -L -o "Table_S5.doc" "https://ndownloader.figshare.com/files/1100959"
curl -L -o "Text_S1.doc" "https://ndownloader.figshare.com/files/1100968"
curl -L -o "Text_S2.doc" "https://ndownloader.figshare.com/files/1100975"

文件清单

• Figure_S1.doc（56.83 KB）
• Table_S1.doc（54.27 KB）
• Table_S2.docx（16.42 KB）
• Table_S3.xlsx（24.41 KB）
• Table_S4.xlsx（53.97 KB）
• Table_S5.doc（119.81 KB）
• Text_S1.doc（59.39 KB）
• Text_S2.doc（66.05 KB）

文件总体积 451.15 KB（源站 API 实测）。

数据说明

Background
Patients with chronic disease may experience complicated management plans requiring significant personal investment. This has been termed ‘treatment burden’ and has been associated with unfavourable outcomes. The aim of this systematic review is to examine the qualitative literature on treatment burden in stroke from the patient perspective.
Methods and Findings
The search strategy centred on: stroke, treatment burden, patient experience, and qualitative methods. We searched: Scopus, CINAHL, Embase, Medline, and PsycINFO. We tracked references, footnotes, and citations. Restrictions included: English language, date of publication January 2000 until February 2013. Two reviewers independently carried out the following: paper screening, data extraction, and data analysis. Data were analysed using framework synthesis, as informed by Normalization Process Theory. Sixty-nine papers were included. Treatment burden includes: (1) making sense of stroke management and planning care, (2) interacting with others, (3) enacting management strategies, and (4) reflecting on management. Health care is fragmented, with poor communication between patient and health care providers. Patients report inadequate information provision. Inpatient care is unsatisfactory, with a perceived lack of empathy from professionals and a shortage of stimulating activities on the ward. Discharge services are poorly coordinated, and accessing health and social care in the community is difficult. The study has potential limitations because it was restricted to studies published in English only and data from low-income countries were scarce.
Conclusions
Stroke management is extremely demanding for patients, and treatment burden is influenced by micro and macro organisation of health services. Knowledge deficits mean patients are ill equipped to organise their care and develop coping strategies, making adherence less likely. There is a need to transform the approach to care provision so that services are configured to prioritise patient needs rather than those of health care systems.
Systematic Review Registration
International Prospective Register of Systematic Reviews CRD42011001123
Please

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.1371/journal.pmed.1001473（source: https://plos.figshare.com/articles/dataset/_Uncovering_Treatment_Burden_as_a_Key_Concept_for_Stroke_Care_A_Systematic_Review_of_Qualitative_Research_/731401）。