乌干达长期隐球菌脑膜炎生存数据
乌干达利拉地区转诊医院隐球菌脑膜炎诊断与治疗项目去标识化患者登记数据，包含人口学、临床表现、诊断、治疗及长期生存结局。
基本信息
资源简介
乌干达长期隐球菌脑膜炎生存数据
【一句话概览】
本数据集是 figshare 公开的结构化表格数据集，收录 2 个文件、合计 68.59 KB，主题涵盖 Cryptococcal meningitis、Long-term outcomes、standard-of-care、Uganda Data、sub-Saharan Africa，可用于统计建模、特征工程与队列分析，CC BY 4.0 许可开放获取。
【数据集背景】
本数据集源站标题为《Long-Term Cryptococcal Meningitis Survival, Uganda (DATA)》。项目资助方：This work was supported in part by funding from NIH grant R21TW012439, the University of Minnesota Medical School, and the University of Rochester Medical Center; P.R.B. was supported by the Fulbright U.S. Scholars Program. M.O. was supported by the Fulbright Foreign Scholars Program and the University of Rochester Department of Public Health Sciences. A.L. was supported through the Robert Wood Johnson Foundation Future of Nursing Scholars and Fellowship; GO Health Travel Fellowship, University of Washington (UW) Department of Global Health; Boeing International Fellowship, UW Graduate School; Hester McClaws Dissertation Fellowship; Fulbright U.S. Student Fellowship; Fogarty Global Health Fellowship [grant number D43 TW009345]; University of Minnesota Medical School; National Institute of Allergy and Infectious Diseases [grant number T32AI055433]; and Fulbright U.S. Scholars Program。源站首次发布：2024-03-21。
【数据内容】
源站原始描述：Data: Meningitis Treatment Program at Lira Regional Referral Hospital (LRRH), Uganda For Authors: Dr.Mark Okwir, MBChB, MMed, [Affiliation: Department of Public Health Sciences, University of Rochester Medical Center, 265 Crittenden Boulevard CU420644, Rochester, NY, 14642, USA. / Lira University, Faculty of Medicine, Lira, Uganda] Data Description: This dataset is derived from a de-identified patient registry of the Meningitis Treatment Program implemented at Lira Regional Referral Hospital (LR…
【数据结构与技术规格】
文件数 2 个，合计 68.59 KB。LONG_TERM_CM_MENINGITIS__UGANDA_DATA.xlsx：application/vnd.openxmlformats-officedocument.spreadsheetml.sheet，53.17 KB。LONG_TERM_CM_MENINGITIS_VARIABLE_KEYS.docx：application/vnd.openxmlformats-officedocument.wordprocessingml.document，15.41 KB。数据集 DOI：10.6084/m9.figshare.25447570.v1。
【主题与分类】
源站学科分类：Central nervous system。主题标签：Cryptococcal meningitis、Long-term outcomes、standard-of-care、Uganda Data、sub-Saharan Africa、CM-Diagnosis Treatment Program。
【适用方向】
结构化表格数据可直接用于统计建模、特征工程与队列分析。
【获取与许可】
源站页面：https://figshare.com/articles/dataset/Long-Term_Cryptococcal_Meningitis_Survival_Uganda_DATA_/25447570
使用许可：CC BY 4.0（https://creativecommons.org/licenses/by/4.0/）。
规范引用：Okwir, Mark; Link, Abigail; Opio, Bosco; Okello, Fred; Nakato, Ritah; Nabongo, Betty; et al. (2024). Long-Term Cryptococcal Meningitis Survival, Uganda (DATA). figshare. Dataset
下载信息
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暂未开放当前数据集主要来源为 Kaggle 公开托管，完整影像包建议通过原始链接或 Kaggle API 获取。
使用方式
数据集获取（Figshare）
- 源站标题：Long-Term Cryptococcal Meningitis Survival, Uganda (DATA)
- DOI：10.6084/m9.figshare.25447570.v1
- 发布日期：2024-03-21
- 文件数：2 个
- 文件总体积：68.59 KB
- 源站页面：https://figshare.com/articles/dataset/Long-Term_Cryptococcal_Meningitis_Survival_Uganda_DATA_/25447570
命令行下载
curl -L -o "LONG_TERM_CM_MENINGITIS__UGANDA_DATA.xlsx" "https://ndownloader.figshare.com/files/45174649"
curl -L -o "LONG_TERM_CM_MENINGITIS_VARIABLE_KEYS.docx" "https://ndownloader.figshare.com/files/45174652"
文件清单
LONG_TERM_CM_MENINGITIS__UGANDA_DATA.xlsx（53.17 KB）LONG_TERM_CM_MENINGITIS_VARIABLE_KEYS.docx（15.41 KB）
文件总体积 68.59 KB（源站 API 实测）。
数据说明
Data: Meningitis Treatment Program at Lira Regional Referral Hospital (LRRH), Uganda
For Authors: Dr.Mark Okwir, MBChB, MMed, [Affiliation: Department of Public Health Sciences, University of Rochester Medical Center, 265 Crittenden Boulevard CU420644, Rochester, NY, 14642, USA. / Lira University, Faculty of Medicine, Lira, Uganda]
Data Description:
This dataset is derived from a de-identified patient registry of the Meningitis Treatment Program implemented at Lira Regional Referral Hospital (LRRH) in rural northern Uganda. The dataset contains de-identified information (HIPPA privacy rule) collected from 2015 to 2021. It represents the implementation of the Cryptococcal Meningitis Diagnosis and Treatment Program (CM-DTP), a standard of care approach. The CM-DTP was initiated in February 2017 and followed the World Health Organization (WHO) and Ugandan Clinical Guidelines for the management of Cryptococcal Meningitis (CM).
Our overarching goal in sharing this data is to contribute to the advancement of knowledge and evidence-based practices in meningitis management. By making this dataset available in a public repository, we aim to facilitate transparency, reproducibility, and collaboration within the scientific community. We encourage fellow researchers, clinicians, and stakeholders to utilize this valuable resource to further explore meningitis diagnosis, treatment strategies, and patient outcomes, ultimately striving for improved healthcare delivery and patient care worldwide.
Data Content:
The dataset is provided in a Comma-Separated Values (.CSV) file. This file contains anonymized patient information collected during the CM-DTP program. A separate file, “Variable Keys”, is provided in both Portable Document Format (PDF) and Microsoft Word Document (DOCX) formats. The “Variable Keys” document provides detailed definitions for each variable included in the dataset. The data encompasses the following key areas:
· Demographics: Age, sex (No date of birth)
· Clinical Presentation with Impact on Long-term Survival of CM Patients: Symptoms at presentation (e.g., altered mentation)
· Diagnostic Workup: Selected laboratory findings including (CD4 counts and viral l
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.6084/m9.figshare.25447570.v1（source: https://figshare.com/articles/dataset/Long-Term_Cryptococcal_Meningitis_Survival_Uganda_DATA_/25447570）。
数据缺失？
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