COMMUNI.CARE研究方案：胰腺癌诊断中的沟通与患者参与
胰腺癌诊断沟通与患者参与研究方案，收集参与度、理解率和依从性数据，进行关联分析。
基本信息
资源简介
COMMUNI.CARE研究方案：胰腺癌诊断中的沟通与患者参与
【一句话概览】
本数据集是 figshare 公开的结构化表格数据集，收录 1 个文件、合计 19.76 KB，主题涵盖 pancreatic cancer、communication、diagnosis、patient engagement、doctor–patient interaction，可用于统计建模、特征工程与队列分析，CC BY 4.0 许可开放获取。
【数据集背景】
本数据集源站标题为《Data_Sheet_1_COMMUNI.CARE (COMMUNIcation and Patient Engagement at Diagnosis of PAncreatic CAncer): Study Protocol.docx》。配套论文《Surgeon-Patient Communication in the Treatment of Pancreatic Cancer—Invited Commentary》发表于 Archives of Surgery（1998），DOI：10.1001/archsurg.133.9.966。源站首次发布：2020-04-30。
【数据内容】
源站原始描述：Background: In many cases of pancreatic adenocarcinoma (PDAC), the diagnosis comes as a surprise to the patient, who often faces a disease that is already at an advanced stage, with poor prognosis. The clinical visit during which the diagnosis is communicated together with the first information regarding the planned treatments is of paramount importance. We hypothesize that the clarity of such information can influence patients'' engagement and thus their level of compliance. Aims: This study aim…
中文译文（机器翻译，仅供快速理解，请以原文为准）：背景：在许多胰腺导管腺癌（PDAC）病例中，诊断对患者来说出乎意料，患者往往面临一种已处于晚期、预后不良的疾病。告知诊断并首次提供计划治疗相关信息的临床就诊至关重要。我们假设，此类信息的清晰程度可影响患者的参与度，从而影响其依从性水平。 目的：本研究旨在收集（a）关于PDAC患者参与水平的定量数据，（b）关于患者对医生所提供信息理解率的数据，以及（c）关于依从性水平的数据；将分析这些变量之间可能存在的关联。 方法：这是一项单中心、观察性、横断面队列研究，研究对象为诊断为PDAC的患者，已获San Raffaele Hospital伦理委员会批准。由于尚无关于PDAC患者理解率与其参与水平和依从性水平之间关联的初步数据，无法进行把握度计算。这是一项初步研究，旨在3个月内入组至少45例PDAC患者。 结论：COMMUNIcation and Patient Engagement at Diagnosis of PAncreatic CAncer（COMMUNI. CARE）将是首项专门研究PDAC患者参与度、诊断时理解率与依从性之间
【数据结构与技术规格】
文件数 1 个，合计 19.76 KB。Data_Sheet_1_COMMUNI.CARE (COMMUNIcation and Patient Engagement at Diagnosis of PAncreatic CAncer): Study Protocol.docx：application/vnd.openxmlformats-officedocument.wordprocessingml.document，19.76 KB。数据集 DOI：10.3389/fmed.2020.00134.s001。
【主题与分类】
源站学科分类：Radiology and Organ Imaging、Foetal Development and Medicine、Obstetrics and Gynaecology、Medical Genetics (excl. Cancer Genetics)、Medical and Health Sciences not elsewhere classified、Dermatology。主题标签：pancreatic cancer、communication、diagnosis、patient engagement、doctor–patient interaction、therapeutic alliance、compliance。
【适用方向】
结构化表格数据可直接用于统计建模、特征工程与队列分析。
【获取与许可】
源站页面：https://frontiersin.figshare.com/articles/dataset/Data_Sheet_1_COMMUNI_CARE_COMMUNIcation_and_Patient_Engagement_at_Diagnosis_of_PAncreatic_CAncer_Study_Protocol_docx/12219338
使用许可：CC BY 4.0（https://creativecommons.org/licenses/by/4.0/）。
规范引用：Consolandi, Monica; Martini, Carlo; Reni, Michele; Arcidiacono, Paolo Giorgio; Falconi, Massimo; Graffigna, Guendalina; et al. (2020). Data_Sheet_1_COMMUNI.CARE (COMMUNIcation and Patient Engagement at Diagnosis of PAncreatic CAncer): Study Protocol.docx. Frontiers. Dataset
【使用注意】
· 源站最后修改于 2023-05-31，引用时请注意版本时效。
下载信息
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使用方式
数据集获取（Figshare）
- 源站标题：Data_Sheet_1_COMMUNI.CARE (COMMUNIcation and Patient Engagement at Diagnosis of PAncreatic CAncer): Study Protocol.docx
- DOI：10.3389/fmed.2020.00134.s001
- 发布日期：2020-04-30
- 文件数：1 个
- 文件总体积：19.76 KB
- 源站页面：https://frontiersin.figshare.com/articles/dataset/Data_Sheet_1_COMMUNI_CARE_COMMUNIcation_and_Patient_Engagement_at_Diagnosis_of_PAncreatic_CAncer_Study_Protocol_docx/12219338
命令行下载
curl -L -o "Data_Sheet_1_COMMUNI.CARE (COMMUNIcation and Patient Engagement at Diagnosis of PAncreatic CAncer): Study Protocol.docx" "https://ndownloader.figshare.com/files/22472213"
文件清单
Data_Sheet_1_COMMUNI.CARE (COMMUNIcation and Patient Engagement at Diagnosis of PAncreatic CAncer): Study Protocol.docx（19.76 KB）
文件总体积 19.76 KB（源站 API 实测）。
数据说明
Background: In many cases of pancreatic adenocarcinoma (PDAC), the diagnosis comes as a surprise to the patient, who often faces a disease that is already at an advanced stage, with poor prognosis. The clinical visit during which the diagnosis is communicated together with the first information regarding the planned treatments is of paramount importance. We hypothesize that the clarity of such information can influence patients’’ engagement and thus their level of compliance.
Aims: This study aims to collect (a) quantitative data on the level of PDAC patient engagement, (b) data on the rate of understanding of the information received from the doctor, and © data on level of compliance; the possible associations between these variables will be analyzed.
Methods: This is a single-center, observational, cross-sectional cohort study on patients diagnosed with PDAC, approved by the Ethics Committee of the San Raffaele Hospital. As no preliminary data are available on the association between PDAC patients’’ understanding rate and their level of engagement and of compliance, no power calculation is possible. This is a pilot study, aimed at enrolling at least 45 PDAC patients during a period of 3 months.
Conclusion: COMMUNIcation and Patient Engagement at Diagnosis of PAncreatic CAncer (COMMUNI. CARE) will be the first study specifically investigating whether there is a relation between PDAC patients’’ engagement, rate of understanding at the time of diagnosis, and compliance.
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.3389/fmed.2020.00134.s001（source: https://frontiersin.figshare.com/articles/dataset/Data_Sheet_1_COMMUNI_CARE_COMMUNIcation_and_Patient_Engagement_at_Diagnosis_of_PAncreatic_CAncer_Study_Protocol_docx/12219338）。
数据缺失？
依托陕西、四川两大基地，我们与超过十家三甲医院建立直接合作关系，覆盖合规授权、采集治理、专业标注、数据交付的全流程，为AI医疗团队提供即拿即用的高质量临床数据。
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