芬兰健康中心纤维肌痛患者体验：一项定性研究

数据集获取（Figshare）

• 源站标题：Experiences of patients with fibromyalgia at a Finnish Health Centre: A qualitative study
• DOI：10.6084/m9.figshare.20106900.v1
• 发布日期：2022-06-21
• 文件数：3 个
• 文件总体积：54.65 KB
• 源站页面：https://tandf.figshare.com/articles/dataset/Experiences_of_patients_with_fibromyalgia_at_a_Finnish_Health_Centre_A_qualitative_study/20106900

命令行下载

curl -L -o "igen_a_2085683_sm5784.docx" "https://ndownloader.figshare.com/files/35967096"
curl -L -o "igen_a_2085683_sm5783.docx" "https://ndownloader.figshare.com/files/35967099"
curl -L -o "igen_a_2085683_sm5782.docx" "https://ndownloader.figshare.com/files/35967102"

文件清单

• igen_a_2085683_sm5784.docx（18.04 KB）
• igen_a_2085683_sm5783.docx（21.53 KB）
• igen_a_2085683_sm5782.docx（15.07 KB）

文件总体积 54.65 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Fibromyalgia is a functional syndrome. Despite recent findings, there is still considerable uncertainty about its diagnostic process.
This study aimed to explore patients’ experiences with fibromyalgia during the diagnostic process in primary health care. Moreover, we tried to determine how diagnostic consultation could be improved.
This study is based on data from patients with fibromyalgia in a primary health care study conducted in Nokia, Finland. Patients with fibromyalgia were identified from electronic medical records. Focus-group participants with fibromyalgia diagnoses were selected using a purposive sampling method to gather a maximum variation sample. Qualitative thematic analysis was used for the coded data from four focus-group discussions in 2018. A description of the coding tree was provided and researchers organised the codes. Finally, all researchers identified themes from the data.
The main unifying entities were the uncertainty and contradictions fibromyalgia patients faced on several occasions. Physicians sometimes offered other diagnoses – like depression – as an explanation for the symptoms, or used repetitive tests to eliminate other possible diagnoses. Furthermore, patients expressed their wishes for a holistic, empathetic, and up-to-date approach to their symptoms.
In our interviews, a good doctor-patient relationship and continuity of care were necessary, as were the physician’s attitude and knowledge of fibromyalgia. Our findings also suggest avoiding repeated or unnecessary rule-out tests and the overdiagnosis of psychiatric disorders is necessary.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.20106900.v1（source: https://tandf.figshare.com/articles/dataset/Experiences_of_patients_with_fibromyalgia_at_a_Finnish_Health_Centre_A_qualitative_study/20106900）。