难以接触的失访丙型肝炎患者的平衡视角：一项定性研究

数据集获取（Figshare）

• 源站标题：The balancing perspective of hard-to-reach hepatitis C patients who were lost to follow-up: A qualitative study
• DOI：10.1371/journal.pone.0230756
• 发布日期：2020-04-13
• 文件数：2 个
• 文件总体积：51.48 KB
• 源站页面：https://plos.figshare.com/articles/dataset/The_balancing_perspective_of_hard-to-reach_hepatitis_C_patients_who_were_lost_to_follow-up_A_qualitative_study/12119436

命令行下载

curl -L -o "pone.0230756.s001.docx" "https://ndownloader.figshare.com/files/22287549"
curl -L -o "pone.0230756.s002.docx" "https://ndownloader.figshare.com/files/22287552"

文件清单

• pone.0230756.s001.docx（26.74 KB）
• pone.0230756.s002.docx（24.74 KB）

文件总体积 51.48 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Background
In the foreseeable future, patients with hepatitis C virus (HCV) with good healthcare access will all have been cured and the lost to follow-up (LFU) HCV-population will increasingly exist of hard-to-reach patients. Efforts to retrieve these individuals with HCV have been moderately successful so far. A deeper understanding of the reasons for loss to follow-up and the underlying processes is lacking.
Aims
To explore reasons for previous loss to follow-up in patients with HCV who have been brought back into care.
Methods
In 2017, fifteen patients with HCV who were evaluated at the University Medical Center Utrecht (UMCU) Infectious diseases outpatient clinic as part of the “REtrieval And cure of Chronic Hepatitis C” (REACH)-project were included in this study through convenience sampling. Face-to-face semi-structured in-depth interviews were conducted and a qualitative analysis based on the grounded theory was applied.
Results
A basic socio- psychological process named “maintaining the achieved balance” was uncovered in patients with HCV who were LFU. This “achieved balance” is the result of a transformative process following the initial HCV diagnosis. It is a steadfast stance in which participants keep HCV out of sight and in the margin of their lives in order to reestablish an optimal state of well-being. The balancing perspective is subsequently defended by repeated evasive behavioral patterns to avoid confrontation with the disease.
Conclusion
The balancing perspective gives insight into why individuals with HCV were not retained in care but also why they remained LFU thereafter. Physicians should realize that this mindset can be persistent and repeated efforts may be needed to finally trace and retrieve these patients.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.1371/journal.pone.0230756（source: https://plos.figshare.com/articles/dataset/The_balancing_perspective_of_hard-to-reach_hepatitis_C_patients_who_were_lost_to_follow-up_A_qualitative_study/12119436）。