参与者特征

美国过敏/免疫专科医生关于遗传性血管性水肿(HAE)研究转化障碍与促进因素的访谈及参与者特征数据。

NIAID Data Ecosystem
浏览 15
文本may inform effortslaboratory testing difficultiesinterviewed us allergyinsurance prior authorizationhealthcare provider directoriesdeidentified interview transcriptsattack prevention strategiesprimary care provider15 interviews showedclinicians &# 8217improve patient carehae clinical practice
Participant characteristics

基本信息

模态
文本
大小
0.000005632 GB
许可
CC BY 4.0
创建/更新时间
2026-10-09
版本
v1

资源简介

参与者特征

【一句话概览】

本数据集是 figshare 公开的文本数据集,收录 1 个文件、合计 5.63 KB,主题涵盖 may inform efforts、laboratory testing difficulties、interviewed us allergy、insurance prior authorization、healthcare provider directories,可用于医学自然语言处理(实体识别、信息抽取等),CC BY 4.0 许可开放获取。

【数据集背景】

本数据集源站标题为《Participant characteristics.》。源站首次发布:2025-10-09。

【数据内容】

源站原始描述:Treatment options for hereditary angioedema (HAE) have evolved due to discoveries in basic and clinical research. HAE clinical guidelines emphasize optimizing quality of life through attack prevention strategies that include long-term prophylaxis. We sought to identify barriers to and promoters of research translation into HAE clinical practice that may inform efforts to improve patient care. We interviewed US allergy/immunology clinicians who completed an online continuing medical education act…

【数据结构与技术规格】

文件数 1 个,合计 5.63 KB。Table 1.xls:application/vnd.ms-excel,5.63 KB。数据集 DOI:10.1371/journal.pone.0329585.t001。

【主题与分类】

源站学科分类:Medicine、Biotechnology、Biological Sciences not elsewhere classified、Cancer、Science Policy、Infectious Diseases。主题标签:may inform efforts、laboratory testing difficulties、interviewed us allergy、insurance prior authorization、healthcare provider directories、deidentified interview transcripts、attack prevention strategies、primary care provider、15 interviews showed、clinicians &# 8217。

【适用方向】

文本类数据可用于医学自然语言处理,如命名实体识别、信息抽取与文本分类。

【获取与许可】

源站页面:https://plos.figshare.com/articles/dataset/Participant_characteristics_/30320101

使用许可:CC BY 4.0(https://creativecommons.org/licenses/by/4.0/)。

规范引用:Langmack, Esther L.; Ravyn, Dana; Lowney, Rob; Goodwin, Beth; Lumry, William R. (2025). Participant characteristics.. PLOS ONE. Dataset

官方服务

专家保障全链路合规授权与标注交付

陕川双基地 × 超十家三甲医院直连

从合规授权、采集治理、专业标注到数据集交付,我们提供全链路闭环服务,让高质量临床数据即拿即用。

⚡️ 需要原始数据或标注支持?联系我们获取定制方案。

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下载信息

注册下载

需要注册 Kaggle 账号并登录后下载,适合需要跟踪下载记录和使用 API 的用户。

暂未开放

公开下载

无需注册即可直接获取公开样本或文档,适合快速预览和评估数据集质量。

免登录

有偿下载

公开数据集受托下载与技术交付服务。

提供高速下载与技术交付服务(收技术服务费,非数据销售)

暂未开放

当前数据集主要来源为 Kaggle 公开托管,完整影像包建议通过原始链接或 Kaggle API 获取。

使用方式

数据集获取(Figshare)

命令行下载

curl -L -o "Table 1.xls" "https://ndownloader.figshare.com/files/58605817"

文件清单

  • Table 1.xls(5.63 KB)

文件总体积 5.63 KB(源站 API 实测)。

数据加载示例(图像类)

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Treatment options for hereditary angioedema (HAE) have evolved due to discoveries in basic and clinical research. HAE clinical guidelines emphasize optimizing quality of life through attack prevention strategies that include long-term prophylaxis. We sought to identify barriers to and promoters of research translation into HAE clinical practice that may inform efforts to improve patient care. We interviewed US allergy/immunology clinicians who completed an online continuing medical education activity on HAE or were identified through healthcare provider directories. Interviews focused on clinicians’ experiences translating HAE research results into clinical care. Deidentified interview transcripts were coded and analyzed to detect emergent themes using Dedoose software. Thematic analysis of 15 interviews showed that insurance prior authorization for HAE medications, including those for long-term prophylaxis, was perceived as the biggest barrier to evidence-based care. Other prominent barriers were laboratory testing difficulties, time constraints, and deficits in both primary care provider and patient understanding of HAE. Promoters of research translation included availability of medication samples, route/frequency of drug administration, and shared decision-making. Clinicians used different resources to learn about HAE, including online chat rooms. None of the clinicians used a validated instrument to assess HAE-related quality of life. Perceptions of the usefulness of HAE clinical guidelines were mixed. A range of factors act as barriers and promoters to research translation into clinical care for patients with HAE. Our findings have implications for interventions to enhance the delivery of evidence-based care for patients with HAE.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.1371/journal.pone.0329585.t001(source: https://plos.figshare.com/articles/dataset/Participant_characteristics_/30320101)。

数据缺失?

依托陕西、四川两大基地,我们与超过十家三甲医院建立直接合作关系,覆盖合规授权、采集治理、专业标注、数据交付的全流程,为AI医疗团队提供即拿即用的高质量临床数据。

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