超越药物障碍:探索多发性骨髓瘤的真实成本
多发性骨髓瘤医疗与社会成本研究数据集,包含系统文献综述、圆桌讨论和在线调查数据,聚焦成本量化与治疗优化。

基本信息
资源简介
超越药物障碍:探索多发性骨髓瘤的真实成本
【一句话概览】
本数据集是 figshare 公开的结构化表格数据集,收录 5 个文件、合计 115.59 KB,主题涵盖 Multiple myeloma、direct costs、indirect costs、treatment costs、economic burden,可用于统计建模、特征工程与队列分析,CC BY 4.0 许可开放获取。
【数据集背景】
本数据集源站标题为《Beyond medicines’ barriers: exploring the true cost of multiple myeloma》。配套论文《Beyond medicines’ barriers: exploring the true cost of multiple myeloma》发表于 Journal of Medical Economics(2022),DOI:10.1080/13696998.2022.2133823。源站首次发布:2022-11-18。
【数据内容】
源站原始描述:The goal of this research was to quantify and qualify all the costs associated with multiple myeloma (MM) from a healthcare and societal perspective and to highlight certain costs that are often underestimated. The study used a mixed methods approach that consisted of three phases: a systemic literature review (SLR), a virtual roundtable discussion based on the results of the SLR, and an online survey. In total, 4321 records were identified by literature and snowball searches. After applying the…
【数据结构与技术规格】
文件数 5 个,合计 115.59 KB。ijme_a_2133823_sm5585.docx:application/vnd.openxmlformats-officedocument.wordprocessingml.document,21.37 KB。ijme_a_2133823_sm5583.docx:application/vnd.openxmlformats-officedocument.wordprocessingml.document,21.06 KB。ijme_a_2133823_sm5581.docx:application/vnd.openxmlformats-officedocument.wordprocessingml.document,19.52 KB。数据集 DOI:10.6084/m9.figshare.21581093.v1。
【主题与分类】
源站学科分类:Medicine、Pharmacology、Biotechnology、Ecology、Biological Sciences not elsewhere classified、Science Policy。主题标签:Multiple myeloma、direct costs、indirect costs、treatment costs、economic burden、health economic modeling、literature review、patient、patient burden、I00。
【适用方向】
结构化表格数据可直接用于统计建模、特征工程与队列分析。
【获取与许可】
源站页面:https://tandf.figshare.com/articles/dataset/Beyond_medicines_barriers_exploring_the_true_cost_of_multiple_myeloma/21581093
使用许可:CC BY 4.0(https://creativecommons.org/licenses/by/4.0/)。
规范引用:Beyond medicines’ barriers: exploring the true cost of multiple myeloma. Taylor & Francis. Choon-Quinones, Mimi; Zelei, Tamás; Barnett, Mike; Keown, Paul; Durie, Brian; Kaló, Zoltán; et al
【使用注意】
· 源站最后修改于 2023-06-01,引用时请注意版本时效。
下载信息
注册下载
需要注册 Kaggle 账号并登录后下载,适合需要跟踪下载记录和使用 API 的用户。
暂未开放公开下载
无需注册即可直接获取公开样本或文档,适合快速预览和评估数据集质量。
免登录有偿下载
公开数据集受托下载与技术交付服务。
提供高速下载与技术交付服务(收技术服务费,非数据销售)
暂未开放当前数据集主要来源为 Kaggle 公开托管,完整影像包建议通过原始链接或 Kaggle API 获取。
使用方式
数据集获取(Figshare)
- 源站标题:Beyond medicines’ barriers: exploring the true cost of multiple myeloma
- DOI:10.6084/m9.figshare.21581093.v1
- 发布日期:2022-11-18
- 文件数:5 个
- 文件总体积:115.59 KB
- 源站页面:https://tandf.figshare.com/articles/dataset/Beyond_medicines_barriers_exploring_the_true_cost_of_multiple_myeloma/21581093
命令行下载
curl -L -o "ijme_a_2133823_sm5585.docx" "https://ndownloader.figshare.com/files/38247047"
curl -L -o "ijme_a_2133823_sm5583.docx" "https://ndownloader.figshare.com/files/38247050"
curl -L -o "ijme_a_2133823_sm5581.docx" "https://ndownloader.figshare.com/files/38247053"
curl -L -o "ijme_a_2133823_sm5578.docx" "https://ndownloader.figshare.com/files/38247056"
curl -L -o "ijme_a_2133823_sm5577.docx" "https://ndownloader.figshare.com/files/38247059"
文件清单
ijme_a_2133823_sm5585.docx(21.37 KB)ijme_a_2133823_sm5583.docx(21.06 KB)ijme_a_2133823_sm5581.docx(19.52 KB)ijme_a_2133823_sm5578.docx(19.46 KB)ijme_a_2133823_sm5577.docx(34.18 KB)
文件总体积 115.59 KB(源站 API 实测)。
数据说明
The goal of this research was to quantify and qualify all the costs associated with multiple myeloma (MM) from a healthcare and societal perspective and to highlight certain costs that are often underestimated.
The study used a mixed methods approach that consisted of three phases: a systemic literature review (SLR), a virtual roundtable discussion based on the results of the SLR, and an online survey.
In total, 4321 records were identified by literature and snowball searches. After applying the eligibility criteria, 49 articles were included in the narrative summary. As combination treatments have become the mainstay of MM treatment, drug costs have become the most important component of the total healthcare costs. Collected evidence suggests that optimizing treatment pathways, besides prolonging patient survival and maintaining quality of life, has the potential to generate cost savings for all stakeholders (payers and patients). Improved patient access to new therapies that can improve outcomes may reduce the “financial toxicity” of MM by decreasing patients’ and caregivers’ productivity loss due to better prognosis and it also has the potential of reducing patients’ direct health care payments.
Heterogeneity of research objectives of included studies, costing methods, and applied measurement units limited the comparability of cost data between studies. Data for more than half of the world’s population, including China, Russia, the Middle East, and Africa were not investigated.
While treatment costs are burdensome for healthcare systems, it is only one of several items that make up the True Cost of MM. Understanding these burdens is one way to argue for optimized treatment pathways and improve patient outcomes by tearing down access barriers.
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.6084/m9.figshare.21581093.v1(source: https://tandf.figshare.com/articles/dataset/Beyond_medicines_barriers_exploring_the_true_cost_of_multiple_myeloma/21581093)。
数据缺失?
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