先天性心脏缺陷咨询中的患者参与和学习

数据集获取（Figshare）

• 源站标题：Patient participation and learning in medical consultations about congenital heart defects
• DOI：10.1371/journal.pone.0220136
• 发布日期：2019-07-24
• 文件数：4 个
• 文件总体积：52.71 KB
• 源站页面：https://plos.figshare.com/articles/dataset/Patient_participation_and_learning_in_medical_consultations_about_congenital_heart_defects/9036191

命令行下载

curl -L -o "pone.0220136.s001.docx" "https://ndownloader.figshare.com/files/16530263"
curl -L -o "pone.0220136.s002.docx" "https://ndownloader.figshare.com/files/16530266"
curl -L -o "pone.0220136.s003.docx" "https://ndownloader.figshare.com/files/16530269"
curl -L -o "pone.0220136.s004.docx" "https://ndownloader.figshare.com/files/16530272"

文件清单

• pone.0220136.s001.docx（13.40 KB）
• pone.0220136.s002.docx（12.91 KB）
• pone.0220136.s003.docx（12.86 KB）
• pone.0220136.s004.docx（13.54 KB）

文件总体积 52.71 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

In this article, patient activity in 8 audio recorded specialist consultations on fetal cardiology is investigated in order to explore how, why and when patients tend to participate in encounters in which the doctor dominates the interaction. The overall question is: How can the participation of patients in the consultations be connected to the development of higher levels of health literacy, i.e. to interactive literacy and to critical literacy? Patient participation is here understood as interactive action and is analyzed in terms of different interactive moves, which are related to different recurring topics. Despite the highly standardized format of the consultations, there is a large variation between the patients’ participation: between 0.7 and 2.8 moves per minute. The patients participate most during the topics ‘Prevalence’ and ‘Consultations’ and least during the topic ‘The normal heart’. Although most of the patients’’ moves are responses to what the doctor says, they remarkably often pose questions and use so called rejoinders. By posing questions, they take control of the information flow and sometimes even change the topics. By using rejoinders, they analyze the problems involved in the discussion e.g. by asking for clarifications or confirmation. Patients with a low over-all participation rate also use fewer moves that indicate higher literacy levels. The qualitative analysis problematizes the idea of a simple scale from basic literacy to critical literacy. Moves that indicate basic literacy skills are interactively important for the learning activity, led by the doctor. However, patients who mainly support the doctor’s initiatives don’t take the opportunity to influence the flow of information in ways that might favor their health literacy development.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.1371/journal.pone.0220136（source: https://plos.figshare.com/articles/dataset/Patient_participation_and_learning_in_medical_consultations_about_congenital_heart_defects/9036191）。